A message of faith and hope

On April 1, 2015, I was in the hospital having my breasts amputated. Mastectomy is such a nice word, but the only thing nice about this procedure is its potential to cure or prevent cancer. I’m happy to be celebrating my three-year anniversary. For those of you who are celebrating Easter today, perhaps my message of faith and hope will resonate.

My first cancer came out of nowhere. I was 43 years old and having vague abdominal pain. I already had a hysterectomy due to painful periods and wanted to be done with all that. My ovaries were removed during that operation. No ovaries but weird stuff going on. I had an exploratory surgery where they go in with a scope through the naval, and that’s when they found cancer.

The doctor said it was ovarian, which kind of blew me away, but it turns out a small percentage of women will get a kind of cancer almost identical to ovarian even without ovaries. That would be me. It’s officially called Primary Peritoneal Cancer (PPC). Most days I just say ovarian, although they are distinct.

It was advanced. Stage 3, Grade 3. The five-year survival rate is about 25-30 percent. The treatment was surgery to remove the tumors and other miscellaneous parts and then six months of chemotherapy. Following the chemo, I had another surgery to see if microscopic cancer remained. I was clear, and here I am, 18 years later with no recurrences.

I never thought about breast cancer, assuming my earlier cancer was a fluke. But I did go every year for a mammogram, and in 2015, it came back with a suspicious mass. After additional tests, I was diagnosed with Ductal Carcinoma In Situ (DCIS), which means the cells that line the milk ducts of the breast have become cancer, but they have not spread into surrounding breast tissue. DCIS is considered non-invasive or pre-invasive breast cancer.

If you’re going to get breast cancer, this is the one you want. Standard treatment is lumpectomy and radiation. However, I had that nasty history, so after all these years, it occurred to the doctors I should be genetically tested. It came back positive for the BRCA1 gene mutation. As the genetic counselor explained it to me, this mutation caused both my cancers and puts me at higher risk of cancer maybe forever.

The doctor advised me to have a bilateral mastectomy, and I agreed. It’s about reducing risk. I also decided not to get reconstruction or wear a prosthesis. I choose to be flat. You can read about that decision here.

In the early years after my first cancer, I had boatloads of check-ups because of the high recurrence rate. Now I go for check-ups twice a year, where they poke around and draw some blood to test for a cancer antigen that could indicate a recurrence.

That’s my cancer story in a nutshell. There are stories within the story, and I will probably write about them at some point. I was unlucky to get cancer but very lucky to survive it. As for the BRCA mutation, no one else in the family had ovarian or breast cancer. My relatives were tested after my diagnosis, and no one came back positive. The best we can figure is that I inherited it from my father, who had prostate cancer in his 50s but died many years ago from something else.

No cancer is good. And there are plenty of other terrible ailments that plague people and have nothing to do with cancer. If you are suffering, I know it’s a struggle to stay positive, but I always had faith as long as I was still alive, I would grow and learn and love and find happiness no matter what. You just keep going.

As for hope, I believe somebody, somewhere beats the odds and from day one, I said, “Why can’t it be me?”